"Emergent Illnesses, Public Scholarship"
1997-1998 Calendar of Speakers and Events

Workshop: "Seeing Invisible Illness: Transforming the Clinical Gaze Through Lived Experience" Deborah Barrett, Organizer
November 1, 1997

Deborah Barrett, Sociologist, Emory University, "Making `invisible' illness visible through social science"
Linda Gooding, Professor of Immunology, Emory University, "Western versus traditional medical models of health and disease"
Kathy Charmaz, Sociologist, Sonoma State University, "How illness transforms the personal and social self"
Joseph Dumit, Biomedical anthropologist, MIT, "Illnesses you have to fight to get social movements and the biomedical economy"
Paula Frew, Historian of Medicine, Emory University, "Integrating biological, psychological, social and cultural perspectives to understand Chronic Fatigue Syndrome"
Eddie Gamarra, Ph.D. candidate in Psychoanalysis and Cinema, Emory University, "A comparison of 19th century and contemporary psychoanalytic thought on CFS."

Panel: "Emerging Illness: Health, Rights and Risk" Lisa Lynch, Organizer
December 6, 1997

Phil Brown, (Sociology, Brown University) who is editing a book with Steve Kroll-Smith (another participant) on modern illnesses which escape the conceptual and clinical grasp of medicine, such as CFS, MCS, carpal tunnel and environmental cancers
Giovanna Di Chior, (Environmental studies, Allegheny College) who is completing a book on women, environmental justice and popular epidemiology in India and the United States
Alert Donay, co-founder of MCS referral and resources, an advocacy group focusing on exposing biased representations of the MCS community
Paul Han, M.D., (Professor of Medicine, University of Pittsburgh) specializes on the ethics of preventative medicine
Nora Jacobson, (postdoctoral fellow, University of Wisconsin) who studies how social constructions of health and illness are reflected in public policy
Steve Kroll-Smith, (Sociologist, University of New Orleans) whose book on Multiple Chemical Sensitivity, Bodies In Protest, has recently been published by NYU Press
Laury Oaks, (Ph.D. Candidate, Anthropology and Population Dynamics, John Hopkins University) whose dissertation examines smoking and pregnancy.

Workshop: "The Politics of HIV/AIDS" Eileen Crist, Organizer
March 21, 1998

Steve Epstein, University of California, San Diego, "Democratic Science? AIDS Activism and the Case for Lay Participation in Biomedical Research"
Richard Parker, Columbia University, "Administering the Epidemic: HIV/AIDS Policy, Models of Development, and International Health in the Late-Twentieth Century"
Cynthia Patton, Emory University, "Queer Peregrinations: Narrating the Mobility of AIDS."

Workshop: "Scenarios from the Sahel" HIV/AIDS Prevention Project
Kate Winskell, Organizer
April 4, 1998

Mr. Niangoran Essan, Head of West and Central Africa Division, United Nations Population Fund, New York
Dr. Delia Barcelona, Technical and Evaluation Division, Information, Education and Youth Branch, United Nations Population Fund, New York
Mr. Gary Engelberg, Director, Africa Consultants International, Dakar, Senegal
Mr. Daniel Enger, Project Manager, Scenarios from the Sahel, Global Dialogues, Dakar, Senegal.

Spring Sawyer Seminar: "Emerging Illnesses and Communities of Suffering"
Randall Packard, Organizer

January 30: Initial Meeting: Readings on Suffering
February 13: "The Emergence of Multiple Sclerosis as a Research Priority and a Popular Crusade, 1946-1960." ColinTalley, History of Medicine, UCSF
February 27: "Menopause and the Internet," Diane Goldstein, Folklore and School of Medicine, University of Newfoundland
March 20: "AIDS, Activism and the Politics of Knowledge." Steven Epstein, Sociology, University of California at San Diego
March 21: Emerging Illness, Public Scholarship Workshop on "The Politics of HIV/AIDS."
March 27: Paul Farmer, MD/anthropologist, Dept. of Social Medicine, Harvard
April 3: "Disease and National Culture: The (Re)Emergence of Tourette Syndrome in the U.S. & France"," Howard Kushner, History of Medicine, San Diego State University
April 4: Emerging Illness, Public Scholarship Workshop on "South-North Dialogues on HIV/AIDS Prevention"
April 22: "The Flower Club," Ellen Spears, Southern Regional Council for Environmental Illness